Sustainability Advisory Board Gathers to Support AIDAVA’s Impact

On 11 March 2025, the AIDAVA Sustainability Advisory Board (SAB) held its fourth meeting to provide strategic insights into how the project’s can deliver lasting impact beyond its funded period. Organised as part of the activities under Work Package 6 (Innovation Management), the meeting brought together AIDAVA project partners and external members of the SAB, offering a valuable opportunity to reflect on the project’s achievements, evaluate early results and shape the path forward.

The session was opened by Terje Peetso, chair of the SAB. The AIDAVA team presented the first-generation prototype and shared key findings from the initial evaluations conducted with patients across four hospitals (Maastro Clinic, Maastricht University Medical Centre, North Estonia Medical Centre and Medical University Hospital Graz).

Discussions centred on the practical implications of AIDAVA’s data curation tools, especially in supporting the quality and usability of health data for patients and healthcare professionals. SAB members offered thoughtful feedback on enhancing user interfaces, promoting health data literacy and tailoring communication strategies to diverse patient needs. Particular interest was expressed in the development of lay summary narratives built from FHIR IPS standard (IPS = International Patient Summary, one of the 6 critical data categories being enforced by EHDS Article 14) generated by AIDAVA as one output for patients; this was considered as an intuitive and impactful way to present curated health information to any citizen.

The board also engaged in strategic dialogue around the European Health Data Space (EHDS) and explored how AIDAVA’s data curation capabilities could contribute to cost-effective implementation of the regulation across hospitals, which need to comply with regulation as data holders and may not have nor the skill set nor the budget to meet these new requirements. AIDAVA could reduce dramatically the cost and the need for experienced staff by automating most of the requirements related to data exchanges. This, however, requires additional discussion on the cost impact on hospitals and policy discussion to address the issue.

The AIDAVA consortium warmly thanks all participants for their contributions and continued engagement in shaping a sustainable and impactful future for health data curation in Europe.