AIDAVA has the potential to democratize participation in data curation & publishing by citizens/patients leading to overall savings in health care costs (through disease prevention, early diagnosis, personalized medicine) and supporting delivery of the European Health Data Space.
Impact to Patients and Public
AIDAVA has the potential to increase the quality, portability, use and reuse of their Personnel Health Data (PHD). It also opens the door for them to become proactive stakeholders in the emerging data economy. They will directly benefit from more complete and processable PHDs, which can be imported into various personal health apps, and can help them better understand their own disease, treatment, and health status, leading to more appropriate, informed health choices.
With AIDAVA-like products, citizens could play a much larger role in improving the quality of their own health data.
- High-quality medical records will give citizens access to improved health and more appropriate treatments, including personalized medicine, because HCPs will have a holistic view of each patient at a glance.
- Some users might become curators for themselves, their loved ones, or for community members. This will create new services, jobs, and forms of social organisation.
- Through their members, with individuals' consent, patient associations will have access to greater insights into unmet health and care needs and priorities, giving them vital evidence that they often lack today.
- In the new data economy, citizens who possess data of higher quality may gain incentives and rewards such as "cheques" to access health services such as fitness centres or potentially decreased insurance premiums.
Impact to Data Stewards
An emerging group of hospital-based data stewards will benefit from AIDAVA, assisting them to curate complex data and maintain disease and patient registries more effectively, with higher consistency and quality. They will be able to focus on data analytics (patient safety, health outcomes) and on developing AI models around prevention, treatment, and monitoring, using the data curated & published with AIDAVA.
Impact to Health Care Providers (HCP)
HCPs’ access to integrated, curated, longitudinal health records will improve their efficiency in support of delivery of care. Clinicians can spend more time with patients, and better care will translate into better outcomes for patients. Furthermore, clinicians can continue to produce medical notes as they want, rather than being forced to spend time on structured data entry - reducing risk of burnouts - because AIDAVA will ensure that the content of clinical narratives can be unlocked more easily.
The availability of more clinical data in AI-ready and reusable formats in patient registries will allow increased development of AI tools supporting research and development of new approaches for preventive and curative medicine, and to optimise clinical guidelines on the basis of richer real world evidence.
EU-wide disease-specific registries with high-quality data provide unseen insights into diagnosis and personalised treatment of complex chronic conditions of large patient cohorts. Using comprehensive data in decision making on the national level can reduce Inequalities in diagnostics and healthcare in the EU.